tag:blogger.com,1999:blog-4776448920980906063.post9044833293215455028..comments2024-01-06T02:54:55.804-08:00Comments on The Baby Bonding Book For Dads: Elie's Story by Holly Smith (about Velo-Cardio-Facial Syndrome)About the bookhttp://www.blogger.com/profile/04411111522044827736noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-4776448920980906063.post-71617284799475479162011-11-23T08:59:02.748-08:002011-11-23T08:59:02.748-08:00My 5 week old great niece had her heart surgery (t...My 5 week old great niece had her heart surgery (truncas arteriosus) yesterday. I am so scared of what the future holds for this little one but found your posting to be uplifting.Auntie Bonnienoreply@blogger.comtag:blogger.com,1999:blog-4776448920980906063.post-74414048207970240562011-02-16T16:54:48.372-08:002011-02-16T16:54:48.372-08:00I am currently studying VCFS and i was quite shock...I am currently studying VCFS and i was quite shocked but happy for your daughter because there are much worse cases out there so I just wanted to say that I'm happy for both Elie and your family.Armellianoreply@blogger.comtag:blogger.com,1999:blog-4776448920980906063.post-29592841599565803922010-03-15T07:51:48.014-07:002010-03-15T07:51:48.014-07:00My daughter was just diagnosed with DiGeorge Syndr...My daughter was just diagnosed with DiGeorge Syndrome/VCFS 2 weeks ago, and will have surgery soon to correct her rare CHD. It is so good to see that picture of a happy and healthy baby who is further down the road than we are!Anonymoushttps://www.blogger.com/profile/18023662613646528161noreply@blogger.comtag:blogger.com,1999:blog-4776448920980906063.post-17268601487820729322008-10-08T09:19:00.000-07:002008-10-08T09:19:00.000-07:00To the last commenter: I forwarded your comment to...To the last commenter: I forwarded your comment to Holly, Elie's mom. I am sure she'll be very touched by it. If you'd like to be in touch with her directly (to ask questions or trade information), please email me and I'll send you her contact information. I'm very sorry for what you are going through. It's really hard.About the bookhttps://www.blogger.com/profile/04411111522044827736noreply@blogger.comtag:blogger.com,1999:blog-4776448920980906063.post-2306377497738494222008-10-07T14:50:00.000-07:002008-10-07T14:50:00.000-07:00It is wonderful to see a picture of your baby sitt...It is wonderful to see a picture of your baby sitting on the couch after such crazy heart surgery. Our newborn is still recovering from an interrupted aortic arch and VSD surgery; she too has VCFS and has a few more physical symptoms -- calcium difficency, cleft palate -- than your beautiful Elie. It is nice to know that there are so many people out there dealing with this diagnosis. God blessAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4776448920980906063.post-64483836258559792482008-03-31T12:59:00.000-07:002008-03-31T12:59:00.000-07:00I am blessed to know Elle and her family and I can...I am blessed to know Elle and her family and I can attest to how healthy and happy she is. I can't wait to read this new book. I will continue to keep Elle and her family in my prayers. They are a strong bunch and Elle seems to be no exception!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4776448920980906063.post-71456494932374784222008-03-31T12:07:00.000-07:002008-03-31T12:07:00.000-07:00What a gorgeous girl! How wonderful to hear of he...What a gorgeous girl! How wonderful to hear of her bravery as well as the bravery of her parents.<BR/><BR/>lots of love from South Africa<BR/><BR/>xxxTertiahttps://www.blogger.com/profile/17041136587660938690noreply@blogger.comtag:blogger.com,1999:blog-4776448920980906063.post-91298401995921463062008-03-31T10:08:00.000-07:002008-03-31T10:08:00.000-07:00Oh, beautiful Elie! What a strong, beautiful girl....Oh, beautiful Elie! What a strong, beautiful girl. <BR/><BR/>Coincidentally, I had open heart surgery on November 12 (but in 2004), and I'm doing great. Must be an auspicious day for open heart!<BR/><BR/>I was diagnosed with congenital heart disease at four months of age, and my parents were overly careful with me -- always worrying that I wasn't healthy/able (which didn't endear me to my siblings, I'm afraid, and also contributed to a general lack of athletic ability, since I was kept on the sidelines most of my life). What great parents to proceed believing that Elie's as able as her siblings! Great parenting, mom and dad!ShariMacDhttps://www.blogger.com/profile/08880242490750057666noreply@blogger.comtag:blogger.com,1999:blog-4776448920980906063.post-43308727247172202642008-03-31T09:42:00.000-07:002008-03-31T09:42:00.000-07:00Wow! That is one adorable baby. Your courage and h...Wow! That is one adorable baby. Your courage and honesty is an inspiration, and I wish you all the best.<BR/><BR/>Jennifer, I can't wait to read the bonding book. It looks fantastic.Martha Brockenbroughhttps://www.blogger.com/profile/00921299935406060841noreply@blogger.com